Links
Organizations:
World Parkinsons Program
https://parkinsonseducation.blogspot.com/
Movers & Shakers Inc.
A National Parkinson Disease Support & Advocacy Organization
https://www.pdoutreach.org/news.html
www.aphasia.org
Information and resources for individuals with aphasia and their families
https://www.parkinsonsneurochallenge.org/
Information and educational programs
The National Parkinson Foundation
Information, resources and links to other websites.
LSVT Global, Inc.
Website contains information on LSVT LOUD speech therapy, LSVT BIG Physical and Occupational Therapy and how to find LSVT Certified Clinicians in your area.
The American Parkinson’s Disease Association
American Speech-Language-Hearing Association
The National Center For Voice And Speech
EPDA: European Parkinson’s Disease Association
The Parkinson Alliance
The Princeton, NJ-based Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson’s disease.
SW Florida Caregivers Support Group
National Foundation for Swallowing Disorders
Parkinson Voice Project https://www.parkinsonvoiceproject.org/
World Parkinson’s Program https://www.pdprogram.org/
Neurochallenge Foundation https://www.parkinsonsneurochallenge.org/
Hope Parkinson Program (Ft Myers, Florida) https://www.hopeparkinson.org/
Support Groups
Hosted by Richard London, join the Parkinson chat room on Wednesday evenings 8-9pm EST. Follow this Chat Room Link and use password: parkie to join.
Parkinson’s Support Group, Charlotte County, Florida
www.PDCareGiverSupport.org
ALS Support Group meets in North Port, Florida
Contact: pstanco@alsafl.org www.alsafl.org
Spasmodic Dysphonia Support Groups
Tampa, Florida – Contact: Ron Langdon at rontampabay@aol.com
Naples/Ft Myers, Florida – Contact: Tom Hofmann at thofmann@hodges.edu
Inspirational:
Surviving Adversity: Living With Parkinson’s
Sometimes Haunted by My Parkinson’s Voice
A Handbook for Life, by Richard London. Also publishes e-newsletter, audio CD’s and information for Persons with Parkinson’s
A Soft Voice in A Noisy World, A Guide to Dealing and Healing, author: Karl Robb, Reiki Master, PWP
Decide Success…you ain’t dead yet. John M. Baumann, BBA.JD, Parkinson Proud, motivational speaker
Resources in Canada
Speech Language And Audiology Canada
www.Sac-Oac.Ca/Seniors
Find A Speech Language Pathologist Near You – Canada
www.sac-oac.ca/regulatory-bodies-0
Baycrest Center In Toronto, On, Ca
(416) 785-2500
The Ontario Association Of Speech Language Pathologists And Audiologists
www.Osla.On.Ca/Page/Serviceinontario
Contact The World Parkinson’s Program
Info@Pdprogram.Org
(416) 919-1899
Exercise Tools
Delay The Disease Exercise Program lead by David Zid
EMST 150 expiratory muscle strength trainer
www.stretchme.com
Dynamic Flexibility DVD, seminars, and products.
Mini Digital Sound Level Meter
https://www.parts-express.com/pe/showdetl.cfm?Partnumber=390-722
Tremble Clefs Program
Therapeutic singing for people with Parkinson’s Disease.
Parkinson Voice Project
SpeakOut (R) intensive voice treatment and LOUD Crowd(R) ongoing maintenance group.
LSVT LOUD Homework Helper DVDs and Videos
Videos to support home practice of LSVT LOUD exercises during and after LSVT LOUD treatment.
LSVT Companion®, Client Edition
FDA-cleared medical device, this speech exercise computer program leads you through LSVT LOUD exercises, measures results and provides instant feedback via a virtual coach! This is for use during or after treatment.
LOUD for LIFE®
Community-based exercise class which offers the opportunity for people who have completed LSVT LOUD to practice their exercises and louder voices, not just at home by themselves, but also in a group setting with other LSVT LOUD graduates.
Parkinson Wellness Recovery (PWR)
Provides access to Parkinson disease-specific exercise programs that hold promise to slow disease progression, improve symptoms, restore function, and increase longevity and quality of life.
Products, Services & Education:
World Parkinson Program
https://www.pdprogram.org/committees
Richard London: Handbook For Life Seminars
https://www.ahandbookforlife.com/about
SallyCares.com – Caregiver Information & Support
https://www.sallycares.com/
DPS
A Florida based company helping patients find affordable medications.
Communication Connection
Enhancing the quality of life for the older adult. Resources for patients, families, and caregivers developed by Kathryn Kilpatrick, Speech-Language Pathologist.
Public Health Information Guide
Help prospective students find information about Public Health degree programs across the country just by visiting one site.
SpeechVive – device intervention enhances speech for persons with Parkinson’s
Sally Cares online rehabilitation specialist
LSVT LOUD/LSVT BIG Webinars
Learn about how the LSVT programs can improve your voice, communication and mobility during these free on demand webinars.
LSVT LOUD/LSVT BIG Events
Register for an upcoming free webinar or live seminar to learn more about the LSVT programs