Links

Organizations:

World Parkinsons Program
http://parkinsonseducation.blogspot.com/

Movers & Shakers Inc.
A National Parkinson Disease Support & Advocacy Organization
http://www.pdoutreach.org/news.html

www.aphasia.org
Information and resources for individuals with aphasia and their families

http://www.parkinsonsneurochallenge.org/
Information and educational programs

The National Parkinson Foundation
Information, resources and links to other websites.

Lee Silverman Voice Treatment

LSVT Global, Inc.
Website contains information on LSVT LOUD speech therapy, LSVT BIG Physical and Occupational Therapy and how to find LSVT Certified Clinicians in your area.

The American Parkinson’s Disease Association

American Speech-Language-Hearing Association

The National Center For Voice And Speech

EPDA: European Parkinson’s Disease Association

Parkinson’s Focus Today

The Parkinson’s Coach

The Parkinson Alliance
The Princeton, NJ-based Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research to find the cause and cure for Parkinson’s disease.

SW Florida Caregivers Support Group

National Foundation for Swallowing Disorders

Parkinson Voice Project https://www.parkinsonvoiceproject.org/

World Parkinson’s Program http://www.pdprogram.org/

Neurochallenge Foundation   http://www.parkinsonsneurochallenge.org/

Hope Parkinson Program (Ft Myers, Florida)  http://www.hopeparkinson.org/

 

Support Groups

Hosted by Richard London, join the Parkinson chat room on Wednesday evenings 8-9pm EST.  Follow this Chat Room Link and use password: parkie  to join.

Parkinson’s Support Group, Charlotte County, Florida
www.PDCareGiverSupport.org

ALS Support Group meets in North Port, Florida
Contact: pstanco@alsafl.org  www.alsafl.org

Spasmodic Dysphonia Support Groups
Tampa, Florida – Contact: Ron Langdon at rontampabay@aol.com
Naples/Ft Myers, Florida – Contact: Tom Hofmann at thofmann@hodges.edu

Inspirational:

Surviving Adversity: Living With Parkinson’s

Sometimes Haunted by My Parkinson’s Voice

A Handbook for Life, by Richard London. Also publishes e-newsletter, audio CD’s and information for Persons with Parkinson’s

A Soft Voice in A Noisy World, A Guide to Dealing and Healing, author: Karl Robb, Reiki Master, PWP

Decide Success…you ain’t dead yet. John M. Baumann, BBA.JD, Parkinson Proud, motivational speaker

 

Exercise Tools

Delay The Disease Exercise Program lead by David Zid

EMST 150 expiratory muscle strength trainer

www.stretchme.com
Dynamic Flexibility DVD, seminars, and products.

Mini Digital Sound Level Meter
http://www.parts-express.com/pe/showdetl.cfm?Partnumber=390-722

Tremble Clefs Program
Therapeutic singing for people with Parkinson’s Disease.

Parkinson Voice Project
SpeakOut (R) intensive voice treatment and LOUD Crowd(R) ongoing maintenance group.

 LSVT LOUD Homework Helper DVDs and Videos
Videos to support home practice of LSVT LOUD exercises during and after LSVT LOUD treatment.

LSVT Companion®, Client Edition
FDA-cleared medical device, this speech exercise computer program leads you through LSVT LOUD exercises, measures results and provides instant feedback via a virtual coach! This is for use during or after treatment. 

LOUD for LIFE®
Community-based exercise class which offers the opportunity for people who have completed LSVT LOUD to practice their exercises and louder voices, not just at home by themselves, but also in a group setting with other LSVT LOUD graduates.

Products, Services & Education:

World Parkinson Program
http://www.pdprogram.org/committees

Richard London:  Handbook For Life Seminars
http://www.ahandbookforlife.com/about

SallyCares.com – Caregiver Information & Support
http://www.sallycares.com/

DPS
A Florida based company helping patients find affordable medications.

Communication Connection
Enhancing the quality of life for the older adult. Resources for patients, families, and caregivers developed by Kathryn Kilpatrick, Speech-Language Pathologist.

Public Health Information Guide
Help prospective students find information about Public Health degree programs across the country just by visiting one site.

SpeechVive – device intervention enhances speech for persons with Parkinson’s

Sally Cares online rehabilitation specialist

LSVT LOUD/LSVT BIG Webinars
Learn about how the LSVT programs can improve your voice, communication and mobility during these free on demand webinars.

 LSVT LOUD/LSVT BIG Events
Register for an upcoming free webinar or live seminar to learn more about the LSVT programs

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