Voice Aerobics is hosted by
Mary Spremulli, a speech-language pathologist and blogger. Mary
and guests talk about issues affecting people living with
Parkinson's and other neurogenic conditions. Learn more and live
Author John Pepper is the Man Who
Walked Off Parkinson's
Hosted by: Blog Talk Radio
Guest: John Pepper was diagnosed with Parkinson's in 1992 and, ten years later, while serving as President of the South African Parkinson's Association, he wrote the first edition of his book: There is LIFE After Parkinson's. He developed the idea that exercise might help his condition and through self-experimentation he developed an exercise and movement protocol that includes vigorous walking.
John's personal story about his journey through Parkinson's disease, his setbacks, achievements, discoveries, disappointments, and ultimate triumph, may to some, fly in the face of the generally-accepted PD prognosis of unavoidable and relatively rapid decline.
He believes the lack of hopeful information feeds depression and negative attitudes, stating: "You cannot maintain or improve your quality of life if you believe that it is not possible."
John was featured in Norman Doidges' book "The Brain's Way of Healing" as 'A Man Who Walked off His Parkinsonian Symptoms', and today at 82 years young, he is devoting the rest of his life to sharing his story, teaching others with Parkinson's how he did it - how he reversed the most disabling of his symptoms and reclaimed his life.
To visit John's website: http://www.reverseparkinsons.net
John is travelling in the United States this month and I feel fortunate to have him join me for an interview! He will explain how, for him, a longtime integrated approach of strenuous exercise –particularly aerobic walking—and brain exercises have enabled him to regain and maintain his physical and intellectual flexibility and balance.
Please join us as John shares his personal philosophy and experience of being able to manage the symptoms of Parkinson's and live an active and positive life.
SPEAK OUT!® Charlotte County
Join us for the LOUD Crowd® maintenance program for those with Parkinson’s who have completed SPEAK OUT!® or LSVT® LOUD individual therapy.
Download the flyer here
SPEAK EASY© at Hope Parkinson, Cape Coral, FL
Join us for a 5 week Parkinson's group speech therapy clinic.
Download the flyer here
Voice Aerobics is proud to be a community sponsor for the
Davis Phinney Foundation Victory Summit® Southwest Florida Parkinson's symposium
To be held Friday, March 3, 2017, at the Charlotte Harbor Event Center, the free event requires pre-registration. When registration opens in December 2016, we recommend you register as early as possible! MORE INFO
[Click the titles in the grey boxes below]
June 17, 2016 - June was Aphasia Awareness Month
Living with Aphasia and Community Based Programs
My guests were Jackie Hinckley, PhD, Executive Director, Voices of Hope for Aphasia, and Dr. Audrey Holland, Professor Emeritus of Speech, Language, and Hearing Sciences at the University of Arizona.
Dr. Jackie Hinckley has over 25 years of experience directing clinical and research programs that specialize in the treatment of aphasia and related neurogenic communication disorders. In addition to serving as Executive Director, she is Associate Professor Emeritus at the University of South Florida. Dr Holland has published over 125 research articles, textbooks, and clinical tools including: Counseling in Communication Disorders: A Wellness Perspective.
Aphasia is an acquired communication disorder that affects over 1,000,000 million Americans. Aphasia impairs a person's ability to process language, and/or their ability to speak and understand others, but does not affect intelligence.
As a result of their difficulty communicating, people with aphasia may experience great isolation and frustration in their daily lives, which is often made worse by the lack of information that they receive about their condition, and the majority leave the health care system without referrals to resources in their own communities.
Voices of Hope for Aphasia, is a community based program that was the brainchild of a patient and his wife.It is not a therapy program, rather it is designed to provide the communication bridges that will help people with aphasia do the things that are most important to them, and take part in their own life. Voices of Hope for Aphasia reconnects people, living with aphasia, with their lives through innovative programs.
If you are someone living with, or loving someone with aphasia, or, if you are a professional working with people with aphasia, please listen to the podcast.
Learn about Aphasia (click the logos)
May 20, 2016 - Life, Love and Caring for Someone with PSP (Progressive Supranuclear Palsy)
My guest: Kathryn Leigh
Kathryn Leigh Scott, author, actress, producer, publisher and spokesperson, Cure PSP, joins me to discuss her new book, Last Dance at the Savoy.
Upon graduating from New York's American Academy of Dramatic Arts, Kathryn landed the ingénue lead in the classic Gothic daytime drama "Dark Shadows", and later wrote "My Scrapbook Memories of Dark Shadows" to coincide with the 20th anniversary of the show. While writing the book and continuing her acting career, Kathryn launched Pomegranate Press, Ltd.
Last Dance at the Savoy, her recent book, is a touching memoir and love story that chronicles the challenges of living with her husband’s medical diagnosis of PSP. Kathryn’s active and creative life nearly came to a halt when her husband, Geoff Miller, founding editor of Los Angeles Magazine, was diagnosed with PSP.
PSP is often a Parkinson’s look-alike in the initial stages, but once its unique characteristics are recognized, the course is often more rapid and less amiable to treatment. Unfortunately, PSP has not received the same attention as some related neurological diseases and yet, as our population ages, prime-of-life diseases such as PSP, will unfortunately increase.
While Kathryn has made a point of including insights and practical suggestions for carepartners in the book, this is far from medical reading but instead, from the first few pages, the reader will be lured into a romantic story. Last Dance at the Savoy is a love story about how this couple's commitment surmounts the daily challenges of facing an unknown future together.
April 29, 2016 - How to Live an Amazing Life with Parkinson’s…or any other challenge you are facing.
"A Corporate Attorney, a Motivational Speaker, and a guy
with Parkinson’s walked into a room..."
Our special guests: John Baumann
If the day you were diagnosed with Parkinson’s disease, you thought it was the end of the world, you need to tune into this podcast. Why?
Because John Baumann, who was diagnosed with Parkinson’s at the age of 34 while practicing law, will tell you how, for him, a diagnosis of PD became a life saving event. John will reveal his success formula for living an amazing life - with or without Parkinson’s disease.
“My basic message is that whatever hand life deals you (whether your fault or not), whatever life-changing adversity you have to endure, you still have some control over it to not just live well but live an AMAZING LIFE. It takes faith in yourself, discipline, determination, desire, intensity and inner strength. For me, it was having Parkinson’s disease in my 30’s; I am 54 today and have very few symptoms."
John, author of DECIDE SUCCESS: Twelve Action Steps to Achieve the Success You Truly Desire, will join me to discuss the “secrets” of living well with Parkinson’s or any other adversity facing you. He will also put on is law hat and respond to questions about Parkinson’s and the workplace, social security disability and other work place challenges individuals with PD may have confronted.
Trust me when I say, whether you are a PWP, a care-partner or professional, John’s message will resonate with all of you. You will laugh. You will cry. You will be inspired!
March 18, 2016 - Benefits of Singing for Persons with Parkinson’s and other Neurological Diseases
Our special guests:
Dr. Ludy Shih, Beth Israel Deaconess Medical Center. Assistant Professor of Neurology at Harvard Medical School and Director of the Deep Brain Stimulation (DBS) Program and the Movement Disorders Fellowship Program.
Kathleen Hansen, Director of the San Diego Tremble Clefs, A network of therapeutic choruses for people living with Parkinson's
Dr. Shih was a co-investigator in a pilot study, SING-PD which examined the benefit/s of group singing therapy for PD-related voice/speech disorders. Those study results found that choral singing did not provide the same benefit/s as intensive voice therapy treatment, when loudness was the primary outcome measure. Other research investigating voice and choral singing treatment in persons with PD has reported improvements in measures of respiratory function, suggesting that interest in this area of research will continue to grow because of the behavioral similarities between singing and speaking.
Dr. Shih will discuss some of the shared and distinct neural correlates of both singing and speech, and opportunities for future research.
Ms. Hansen is the Director of the San Diego Tremble Clefs®, a nationwide program, begun by a speech-language pathologist. Tremble Clefs® support the view that choral singing provides therapeutic benefit through: breathing, stretching, posture activities, vocal exercise, rhythm and movement, and a strong social support system.
February 26, 2016 - Flying Solo With Parkinson’s
Guests: Dr. Paul Short, the Parkinson's Coach, is a neuropsychologist specializing in work with individuals and families touched by movement disorders.
Singles now outnumber married people in the United States. In 2014 it was reported that, for the first time, the number of unmarried American adults outnumbered those who were married. One in 7 lives alone – about 31 million compared with 4 million in 1950 – and many of those are clustered in urban centers.
The growth in the number of men living alone is especially dramatic, rising from less than 6 percent in 1970 to more than 12 percent in 2012, according to a Census Bureau report released in 2014, fifteen percent of households are women living alone.
The prevalence of idiopathic Parkinson’s disease (IPD) rises sharply with age, and with a three- to fourfold increase in disease rate within the United States is expected to occur over the next ten years, what will it mean for those who live alone?
As someone who lives alone, I experienced firsthand the turmoil an unexpected injury or illness can bring, when nearly two years ago I had a fall with a severe wrist fracture. As the sole earner, I was acutely aware of how quickly the dominoes could fall if I was unable to work and fulfill my life’s obligations.
Do you live alone? Do you have Parkinson’s? How do you approach work, medications, and appointments? What are your concerns about the future? We want to hear from you.
Please join me and Dr. Paul when we discuss the unique challenges of being single and coping with Parkinson’s or other chronic disease.
About Dr. Paul: Dr. Paul addresses a variety of topics on his website www.theparkinsonscoach.com . You can also follow Dr. Paul on Twitter #Pdpsych and on Facebook at Dr Paul, The Parkinson’s Coach
January 29, 2016 - About Dysphagia
We’re Talking About Dysphagia, including: Effects of DBS on swallowing in Parkinson’s disease, and support for people living with swallowing disorders.
Guests: Luis F. Riquelme, Ph.D., CCC-SLP, BCS-S, Director, Center for Swallowing and Speech-Language Pathology at New York Methodist Hospital, and Associate Professor, New York Medical College. Also, Ed Steger, President, National Foundation of Swallowing Disorders.
Dysphagia (swallowing disorder) can occur during an acute illness, such as a stroke, or be the result of head and neck surgery, oral cancers or be associated with a chronic neurodegenerative disease. In all instances, a “failed swallow study,” can represent the beginning of a challenging time for many people, and for some set them on a quest to eat “normally” again.
Modifications to one’s diet, altering food consistencies, and even a feeding tube may be among recommendations, and a person with dysphagia enters a time when eating and drinking can never be taken for granted.
Do you have difficulty taking pills? Do you cough when drinking water or other liquids? Does food get “stuck” when you swallow? If you answered yes to any of these questions, you will want to join the discussion when we talk about dysphagia signs and symptoms and what help is available.
Dr. Luis Riquelme, a dysphagia researcher and speech-language pathologist will discuss some of the current research findings and treatment trends in dysphagia. Ed Steger will share what he has learned firsthand living with dysphagia and the insight gained from contact with hundreds of patients and caregivers who have contacted the National Foundation of Swallowing Disorders looking for support and guidance.
About NFOSD: Inspired by the limitations of available treatments and the struggles, challenges and sheer bravery of patients suffering from dysphagia, the National Foundation of Swallowing Disorders was founded in 2006 as a national, not for profit 501c3 organization. The only organization of its kind, it brings together patients and medical professionals, funds promising patient-oriented research and provides education and support to patients and providers. NFOSD’s mission is to provide patient hope and improve the quality of life for those suffering from all types of swallowing disorders.
November 23, 2015- Patience and Well Being in Parkinson's: Parkinson Alliance 2015 Survey Results
Hosted by: Blog Talk Radio November 13, 2015 at 12pm EST
Guests: Carol Walton, CEO of the Parkinson Alliance, and Neuropsychologist, Jeffrey Wertheimer, PhD, discuss findings of surveys from 2015.
Could cultivating "patience" help you cope better with a diagnosis of Parkinson's disease?
The majority of individuals with Parkinson's(PD), responding to a 2015 Parkinson's Alliance survey think so. They reported that patience helps them cope with their symptoms, and over half of the participants reported that patience increased their engagement in social activities.
So, what is patience? You may have been told by your parents or teachers that it is a virtue to acquire. But, do you really know what patience is and how it might actually help anyone cope with disease?
It turns out that cultivating patience is a part of a trend towards a more holistic approach to treating persons with PD, and when incorporated into a "well-being-model," it shifts from a focus on physical symptoms to a broader scope of wellness and well-being.
Information about patience and additional aspects of psychological well-being as it relates to individuals with PD will be the focus of our discussion.
About DBS4PD.org (www.dbs4PD.org) is a web based community founded by the President of the Parkinson Alliance, Margaret Tuchman, DBS-STN patient. DBS4PD.org is gaining a national reputation for its surveys which provide an opportunity for persons living with Parkinson's and their caregivers to share what matters most to them about a variety of important topics. The Parkinson Alliance surveys are a unique opportunity for you, someone living with Parkinson's to have a voice in what matters to you, and in turn, survey findings help to provide answers for members of the PD community.
To learn more about DBS4PD.org or to participate in upcoming surveys, visit: http://www.dbs4pd.org/survey.php
October 16, 2015 - Parkinson’s Action Network (PAN)
Guests: Michael J. Church, Florida State Director PAN and Adrienne O’Neill, M. Div., South Carolina State Director Parkinson’s Action Network
The Parkinson’s Action Network (PAN) is the unified voice of the Parkinson’s community in the United States, advocating for better treatments and a cure. In partnership with other Parkinson’s organizations and a powerful grassroots network, their mission is to educate the public and government leaders on better policies for research and about issues affecting quality of life for people living with Parkinson’s.
PAN has a unique structure as the one organization in Washington, DC advocating on behalf of the entire Parkinson’s community. Research and innovation, access to care and medications, and data collection on Parkinson’s disease are among its many projects.
About my guest: Michael J. Church, Executive Director, Movers & Shakers, Naples, Florida and Adrienne O’Neill, M.Div. are both living with the daily challenges of Parkinson’s disease diagnosis, but neither has time for feeling sorry for themselves, instead, they are actively working as their state’s representative to PAN. The issues that fuel their passions, the current activities of the national organization, and opportunities for your involvement, will be the subject of our discussion. “Advocacy is a year round activity undertaken with boldness and commitment to something bigger than ourselves.” Michael J. Church, Fl. State Director
September 25, 2015 - Atypical Parkinson's Diseases PSP (Progressive Supranuclear Palsy),CBD (Corticobasal degeneration), and MSA Multiple system atrophy.
All of the above neurodegenerative diseases may be Parkinson's look-alikes at first glance, and it is not uncommon for individuals to see multiple medical professionals before receiving an accurate diagnosis. Once diagnosed, patients often sadly realize that their disease has a much more aggressive and less treatable course than Idiopathic Parkinson's Disease. Falls are often an early symptom, but with progression, impairment in speech and swallowing is common, and referral to a speech-language pathologist, physical and occupational therapist is recommended. From onset of symptoms to diagnosis and beyond, individuals struggle to cope with the daily effects of the disease on their body, family, and emotions. Support groups, online and in person can be a life boat in the rough seas of living with these rare diseases.
Awareness, education, care, and cure for devastating prime of life neurodegenerative diseases is the mission of Cure PSP.
About my guests: Trish Caruana, MSW is Vice President Cure PSP, where she works to broaden and develop new avenues of support for those impacted by PSP/CBD and MSA. She provides education and public awareness about the impact of these diseases on patients and their family members. In addition to public awareness and advocacy, Cure PSP works to raise awareness of these rare neurological brain diseases and increase accurate diagnoses and treatment.
Ms. Caruana has created innovative programming and widened the reach of education and support services for patients, care partners and healthcare professionals, and is currently working to establish new international collaborations and partner with related entities to establish a Global Database.
August 28, 2015 - "Difficult Patients and Difficult Decisions: Give Me A Break"
Sponsored by National Foundation of Swallowing Disorders (NFOSD)
Therapists, nurses, health care professionals and others joined us to hear my guest, psychologist Dr. Angelo Domingo provide a little therapy for the therapist.
- Setting boundaries with patients or their families
- Gracefully discharging patients
- How to break bad news, or make a recommendation that the patient is NOT happy about
- Dealing with patients who cannot or will not follow through with treatment recommendations
We wouldn't be working in the health care professions if we didn't care about people, but sometimes we may care too much. The podcast offered a little (Welcomed!) self-care.
Spasmodic Dysphonia: Unmasking the Mystery
Blog Talk Radio: Friday, June 26, 2015 at 12:00 pm EST
Guest: Christopher Gilbert, PhD, Clinical Psychologist
Christopher Gilbert, PhD, is a clinical psychologist currently associated with the Kaiser Permanente Chronic Pain Management Program, located in San Francisco, California. Dr. Gilbert has co-authored the book: Recognizing and Treating Breathing Disorders and published articles related to hyperventilation, anxiety and panic. He will discuss techniques which may be of benefit to patients, including: self-regulation of breathing and breathing re-training, and the use of bio-feedback.
Spasmodic Dysphonia: Unmasking the Mystery
Blog Talk Radio: Friday, May 22, 2015 at 12:00 pm EST
- Kimberly Kuman
- Charles (Charlie) Reavis
- James (Jim) Anderson
When a person with spasmodic dysphonia speaks, involuntary muscle spasms in the larynx cause the sound to be strained, strangled, breathy or whispery. Patients often spend years going from one medical specialist to another, until an accurate diagnosis is obtained. Kimberly Kuman, Executive Director of the National Spasmodic Dysphonia Association, President of the Association, Charlie Reavis and support group leader Jim Anderson join me as guests.
Anderson Kimberly Kuman, has served as the Executive Director of the National Spasmodic Dysphonia Association since 2005. She joined the Dystonia Medical Research Foundation in 1992, and served as Director of Operations for the Alexian Neurosciences Institute in 2002, where she managed the Movement Disorders and Alzheimer's clinics.
Charlie holds degrees in electrical and industrial engineering, with a vast career in telecommunications and management. He was diagnosed with adductor spasmodic dysphonia (SD) in 2001 and received his first Botox treatment soon after diagnosis. He joined the National Spasmodic Dysphonia Association as a Board member in 2002, and in 2010, he was elected as President.
Jim is a 51 year old retired firefighter, who recently obtained his Bachelor's Degree in Accounting. His symptoms of adductor SD began during his senior year in high school, and his first Botox treatment was received at the Greater Baltimore Medical Clinic. Jim has been active in community politics, and also co-leader of the Tampa Bay SD support group. Jim helps to organize an annual fundraiser and works to increase awareness among the public and professionals about appropriate diagnosis and treatment for persons with SD.
Starting A Parkinson’s Support Group
April 17 & 27, 2015 at 12:00 pm noone EST - Blog Talk Radio - Voice Aerobics Talking 2 You -Starting A Parkinson’s Support Group
- Deborah (Debbie) Dalin Guyer, MA Executive Director of the Greater St. Louis American Parkinson Disease Association (APDA)
- Kelly and Pete Gaylord, co-facilitators of an active Parkinson’s disease support group located in Punta Gorda, Florida.
Debbie Guyer’s background of experience makes her uniquely qualified to guide individuals interested in developing a PD support group. Since 2007, Ms. Guyer has been the Coordinator for the Information & Referral Center of the APDA at Washington University School of Medicine, one of eight APDA Centers for Advanced Parkinson Research. Prior to that time she served on the Board of Directors for 10 years, chairing the patient services committee. Her educational background includes a Masters degree in Speech Pathology and over a 30 year career she has been involved in running support groups and has been a strong advocate for individuals with communication, voice, and swallowing deficits.
Pete Gaylord was diagnosed with Parkinson's disease in 2001 at the age of 46. He made a key decision at that point in time - to meet the disease head on and do whatever he could to slow the progression. Pete and Kelly are actively involved in the community with Pete teaching weekly exercise and balance classes to persons with PD. Kelly, an artists and carepartner, saw a need in the community to provide information and resources to spouses and other family members, and together with her husband, Pete, began a support group two years ago.
Please join me and my guests as we discuss the ins and outs of starting and maintaining a PD support group.
Listen to the archived discussion on Blog Talk Radio.
Episode #18: Understanding Parkinson’s disease Dementia (PDD) and Dementia with Lewy Bodies (DLB)
Guest: Dr. Mabel Lopez, Neuropsychologist, Mind Brain Care
Mabel Lopez, PhD, is a neuropsychologist specializing in the evaluation and treatment of brain function as it relates to cognitive performance in day to day life.
Dr. Lopez‘s passion for mental wellness is the inspiration for Mind and Brain Care, a private practice located in SW Florida. Dr. Lopez’s exceptional education and vast professional experiences enable her to address brain health on multiple levels and ensures that the cognitive and emotional needs of every patient are met. Her services are all available in English and Spanish.
Dr. Lopez will help listeners understand the differences between Parkinson’s disease Dementia and other Dementia syndromes, and also discuss the role of exercise and nutrition on brain health.
Stem Cells and Neurological Diseases: Facts and Fiction by Juan R. Sanchez-Ramos, M.D., PhD
Curing vision loss, growing new skin for burn patients, growing blood vessels, and curing Parkinson’s disease. These are a few of the proposed benefits from stem cell therapy. Embryonic stem cell research has been a source of political debate and controversy, but adult stem cells exist throughout our body after embryonic development and have been found in tissues such as the brain, bone marrow, blood, blood vessels, skeletal muscles, skin, and the liver. They remain in a quiescent or non-dividing state for years until activated by disease or tissue injury. While it is generally thought that adult stem cells are limited in their ability to differentiate based on their tissue of origin, there is some evidence to suggest that they can differentiate to become other cell types.
Although stem cells do not serve any one function, many have the capacity to serve any function after they are instructed to specialize, and it is this capacity that interests scientists and researchers, and also creates hope that one day replacement cells and tissues may be used to treat brain disease such as Parkinson's and Alzheimer's.
Separating stem cell fact from fiction will be the role of my guest, Dr. Juan R. Sanchez-Ramos, Movement Disorders Professor and Researcher, Department of Neurology, USF Health, Tampa, Fl. Dr. Ramos’ Clinical interests include: neurodegenerative diseases with focus on Huntington’s and Parkinson's disease. His research interests include: neurodegeneration, neurotoxicology and adult stem cell biology. Dr. Ramos is the Medical Director for the Parkinson Research Foundation, and provides monthly “Ask the Doctor” lectures at its community based program, Parkinson Place in Sarasota, Florida.
Falls, Sleep and Autonomic Dysfunction in Persons with Parkinson's Disease
Over 3000 people with Parkinson's disease completed Parkinson Alliance surveys in 2014. Learn about how these common motor and non-motor symptoms affect quality of life, and what you can do about it.
If you are someone living with Parkinson's disease (PD), a spouse or other family member, or a health care professional, you will want to listen to November's podcast! I am joined by Carol Walton, CEO of the Parkinson Alliance, and neuropsychologist, Jeffrey Wertheimer, PhD, who will discuss findings of the top surveys from 2014.
DBS4PD.org is a web based community founded by the President of the Parkinson Alliance, Margaret Tuchman, DBS-STN patient. DBS4PD.org is gaining a national reputation for its surveys which provide an opportunity for persons living with Parkinson's and their caregivers to share what matters most to them about a variety of important topics. The Parkinson Alliance surveys are a unique opportunity for you, someone living with Parkinson's to have a voice in what matters to you, and in turn, survey findings help to provide answers for members of the PD community.
To learn more about DBS4PD.org or to participate in upcoming surveys, visit: www.dbs4pd.org/survey.php
To Drive or Not to Drive?
Howard Kalter, PhD, Neuropsychologist
One of the most contentious issues that that occurs between spouse, adult children and a parent, or doctor and patient, is the issue of driving capacity. The decision to relinquish one's driving privileges may come about following a stroke or head injury, due to physical decline from Parkinson's, PSP, or cognitive decline associated with Alzheimer's.
Guest, Dr Howard Kalter, Neuropsychologist, and Owner of Brain Function Clinic and Psychological Services, Southwest Florida has been a practicing psychologist for over 25 years. He and his staff work with a diverse population which includes: adults and seniors with dementia, neurodegenerative diseases such as Parkinson's and PSP, and those who have suffered a stroke, TBI or other neurological injury. Services include: assessment, neurorehabilitation, and geriatric capacity assessments, including a state of the art Cognitive Behavioral Driving Inventory.
Dr. Kalter discusses factors that might make elderly persons and those with Parkinson's disease and other neurological problems an "at risk" driver, and offers steps you can take now to reduce that risk.
Hearing Loss and Brain Health: What's the Connection?
Recent research findings indicate that older adults with hearing loss are more likely to develop problems thinking and remembering than older adults whose hearing is normal. It has been reported that as many as 27 million Americans over age 50, including two-thirds of men and women aged 70 years and older, suffer from some form of hearing loss.
According to the American Speech-Language-Hearing Association, close to 8 million people between the ages of 18 and 44 have hearing loss. A study last year from Johns Hopkins University and the National Institute on Aging reported that people with hearing loss have accelerated brain tissue loss, possibly contributing to a decline in memory and other cognitive function.
Also of concern is the fact that only 15 percent of those who need a hearing aid get one, leaving much of the problem and its consequences untreated. Diminished hearing can impact conversation with family members and health care professionals. But what if untreated hearing loss could also impact the diagnosis of dementia?
My guest, Dr Lindsey Jorgensen, Audiologist, and Assistant Professor Communication Sciences & Disorders, College of Arts & Sciences, University of South Dakota, and I discussed hearing, cognition, and communication. For more info, contact her at: Lindsay.Jorgensen@usd.edu
Aphasia: Understanding Neuroplasticity and Language Treatments
June is Aphasia Awareness Month
Aphasia is an acquired communication disorder that impairs the ability to speak and understand others, and often includes difficulty reading and writing, but does not affect intelligence. According to the National Aphasia Association, aphasia affects about one million Americans, both young and old, and is more common than Parkinson's disease, cerebral palsy or muscular dystrophy, yet, most people have never heard of it. Improvement in language is a slow process that usually involves both helping the individual and family understand the nature of aphasia.
Research advances are helping us to understand the role of neuroplasticity , the ability of the brain to reorganize itself by forming new neural connections throughout life, and are leading to improved medical and therapeutic treatments.
Guests: Ellayne S. Ganzfried, M.S., CCC-SLP, a speech-language pathologist and the Executive Director of the National Aphasia Association, and Swathi Kiran, PhD,CCC-SLP, a professor at Sargent College of Health and Rehabilitation Sciences at Boston University, Research Director at the Aphasia resource Center, and a World-Renowned Expert in Rehabilitation After Stroke.
The National Aphasia Association (NAA) is a nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families. Visit them at: http://www.aphasia.org/
Parkinson's disease: A Global Perspective
"Those who fight Parkinson's with knowledge always find solutions"
-Dr.Rana, Founder, World Parkinson's Program
The number of persons diagnosed with Parkinson's disease (PD) is expected to double worldwide by 2030, many persons living with Parkinson's disease around the world cannot afford:
- Consultation with a neurologist or
- Medications for their treatment
- An electric tooth brush and other basic healthcare supplies
- A walker, wheelchair or cane, to reduce fall risk, and
- Lack access to educational literature about Parkinson's and hence are without necessary information about their disease.
The World Parkinson's Program has a mission to respond to some of these basic needs, and its founder, Dr. Abdul Qayyum Rana, is passionate about providing education and services globally.
Dr. Rana is a Canadian neurologist specializing in the field of Parkinson's disease and Movement disorders. He is currently the Director of Parkinson's Clinic of Eastern Toronto and Movement Disorders Centre in Toronto, Ontario, Canada. He is the founding editor-in-chief of the Journal of Parkinsonism and Restless Legs Syndrome, and he has published extensively in the field of Neurology.
He is founder of World Parkinson's Education Program, a foundation dedicated to improving the quality of life of persons with Parkinson's and their carepartners by providing education and other supportive services, at a global level.
The Role of Exercise in Post Polio Syndrome: Limbs, Speech and Swallowing
In the late 1970s, polio survivors of the large epidemics of the
late '40s and early '50s reported that they were "tiring more
easily." Because they had been successfully rehabilitated 35
years earlier, they couldn’t find health professionals who
remembered polio or understood its long-term consequences. For
polio survivors who originally had spinal symptoms, "late
effect" symptoms they may now be experiencing include: weakness
of the limbs, muscle fatigue or pain. For those who originally
had bulbar polio, late effect symptoms may include: new problems
with breathing, swallowing or speech. Current evidence suggests
that exercises are often beneficial for many polio survivors
provided that the exercise program is designed for the
individual following a thorough assessment and is supervised
initially by knowledgeable health professionals.
Guests: Joan Headley has been executive director of Post-Polio
Health International (PHI) since 1989,and currently is Chair of
the Board of Paraquad, Inc., Saint Louis' independent living
center. She edits Ventilator-Assisted Living, and PHI
Association Member Communiqué, and co-edited PHI's Handbook on
the Late Effects of Poliomyelitis for Physicians and Survivors©.
She also is a Master Trainer for the Stanford-based Chronic
Disease Self-Management Program.
Post-Polio Health International's mission is to enhance the
lives and independence of polio survivors and home ventilator
users through education, advocacy, research and
networking.www.post-polio.org | www.polioplace.org Contact:
Dr. Barbara Sonies, formerly Chief of Speech Language Pathology
Section and Chief of the Oral Motor Function Section, Department
of Rehabilitation Medicine at the National Institutes of Health
in Bethesda, MD, is currently Research Professor at the
University of Maryland, Department of Hearing and Speech
Sciences and adjunct Professor at George Washington University
Speech and Hearing Department. With Specialty Recognition in
Swallowing and Swallowing Disorders she has published numerous
articles, presented hundreds of seminars on Dysphagia, and
conducted research on various neurologic, neuromotor and
systemic conditions that impact on swallowing function.
Just the Three of Us: Parkinson's and Relationships with Dr. Paul Short
The demands Parkinson's disease (PD) makes upon a couple can
feel like a third person has intruded into the relationship.
The dynamics are changed, communication patterns become
confused, and the rules of interaction developed over a lifetime
just don't seem to apply any more. Dr. Paul, the
Parkinson's Coach, will discuss how couples can cope with the
challenges of PD by putting the relationship first.
Dr. Paul Short, The Parkinson's Coach, is a
neuropsychologist specializing in work with individuals and
families touched by movement disorders. Dr. Paul writes
the "Uniquely Young Onset," blog for the American Parkinson's
Disease Association and contributes regularly on his website
www.theparkinsonscoach.com. You can also follow Dr.
Paul on Twitter #Pdpsych and on Facebook at Dr. Paul, The
Brain and Behavior in Parkinson's Disease with Dr. Joseph Friedman
While many people think of Parkinson's disease
as primarily a movement disorder, characterized by a tremor,
shaking, or stiffness. As many as 90% of persons with
Parkinson also live with behavioral symptoms that can include:
depression, anxiety, disrupted sleep, and apathy.
Misunderstanding of these non-motor problems can leave persons
with Parkinson's and their loved ones confused and frustrated.
Dr. Joseph Friedman is the Director of the
Movement Disorders Program at Butler Hospital and Professor and
Chief of the Division of Movement Disorders/Department of
Neurology at the Alpert Medical School of Brown University and a
leading expert on Parkinson's. We discuss some of these issues,
provide guidance on ways to cope, and suggestions for
communicating with your own physician.
Life after Stroke: Still Standing, Still Funny
16 years ago, newlyweds John Kawie and Marilyn Manno were planning their lives together, and their plan did not include a stroke. But when John, a successful stand-up comedian suffered a right hemisphere stroke, leaving him physically and cognitively altered, they were thrust, as partners, into new and unchartered territory.
Guests, John and his wife, Marilyn, talk about their experiences in an interview that will inspire, inform, and make you laugh. John shares his funny perspective in his humor column "Life at the Curb", which appears in Stroke Connection Magazine, a quarterly publication of the American Heart and Stroke Association, and in the DVD recording of his one man show "Brain Freeze", recorded live at Gotham Comedy Club in New York City.
Voice Master Class with Dr Daniel Boone
The treatment of voice disorders has been
the specialty of Dr. Daniel R. Boone for over 50 years. Dr. Boone
is Professor Emeritus in the Speech-Language and Hearing Department,
University of Arizona, and has authored over 100 publications and
fifteen books, including: The Voice and Voice Therapy, now in its
9th edition. Part therapist, inventor, author and lecturer, Dr.
Boone's programs are used in the United States and throughout the world.
In a rare interview with Dr. Boone he answers a variety of questions
including: How common are voice problems? What is your voice telling
about you? How can Parkinson's affect your voice, and what is speaking
with "intent"? Does voice therapy really help? How to find
and use your natural voice?
Dementia and Dysphagia: Eating Safely at Home
Patients with dementia develop dysphagia
(swallowing problems) sometime during the clinical course of
their disease, and it is estimated that 45% of institutionalized
patients with dementia have dysphagia. Complications from
swallowing problems resulting from neurological diseases and
dementia can include: dehydration, malnutrition, and aspiration
pneumonia, often resulting in repeat hospitalizations, and
sometimes resulting in death.
Join me and guests: Roya Sayadi, PhD, CCC-SLP,
and Joel Herskowitz, M.D.,authors: Swallow Safety: How
Swallowing Problems Threaten the Elderly and Others: A
Caregivers Guide to Recognition, Prevention, and Treatment.
Laura Michael is a nutritional consultant and
owner, Dysphagia Supplies Direct. When Laura’s own father
was diagnosed with Lewy Body Dementia she committed to help her
mother keep her father living well at home and continues that
work with others.
Self Care and the Power of Receiving: Tips for Caregivers
Do you believe it is better to give than
Most of us have been raised to believe that
it is much more virtuous to take care of other people needs
than our own, and so "givers" multitask themselves into
exhaustion sometimes even at the expense of their own health and
emotional well-being. My guests discuss why it is important to
develop the skill of receiving.
Amanda Owen, author: The Power of Receiving: A Revolutionary
Approach to Giving Yourself the Life You Want and Deserve. Richard London, cancer survivor, PWP, and author:
A Handbook for
Life Series, including: 10 Things Every Caregiver Must Know.
Parkinson's and Resilience: Got it? Get it!
Dr. Jeffrey Wertheimer, neuropsychologist
states: "the concept of resilience in Parkinson's Disease is
unintentionally but commonly overlooked or under assessed, as
the usual focus on "what is wrong" tends to overshadow the many
positive attributes that lead one to be resilient, and that
individuals with PD possess and can develop."
Guests, Carol Walton, CEO of the Parkinson
Alliance, and Jeffrey Wertheimer, PhD discuss the findings of
the resilience survey, published 2013, and suggest ways that
anyone living with Parkinson's or other chronic illness might
develop their coping strategies and sense of well-being.
Living Well with Parkinson's: Michael and Gretchen Church
Michael and Gretchen Church are a married
couple, authors, and both living with Parkinson's disease since
their 30's. They discuss their strengths and challenges as
a couple and their advocacy work with the Parkinson Action
Network. Their book "Living Well with Parkinson's Disease"
is a must read for PWP, the people who love them, and the
professionals who treat them.
To enlist individuals in their treatment, and
help them express their personality spirit through voice.
To educate and empower.
~ Mary Spremulli, MA, CCC-SLP, your host, Voice Aerobics
Talking 2 You